Effects on the Family
A diagnosis of mesothelioma deals a shocking blow. The patient may find himself consumed with painful feelings and troubling questions. But although attention is often focused on the victim at this time, it’s also important to recognize the effect of this devastating illness on family and friends.
When a loved one is facing serious illness and possible death, families often feel helpless. Just like the patient with mesothelioma, they may experience emotions of anger, grief and confusion. They may worry about their ability to care for the victim, as well as practical matters such as finances. Close relatives and friends may be afraid to witness the patient’s pain and suffering, or they may experience sadness at the thought of losing someone dear to them.
You Can Learn to Cope
When someone you love has mesothelioma, you can learn to cope. Simply by being present, you are doing the most supportive, caring and compassionate thing you can do for the patient. Start by learning everything you can about mesothelioma-knowledge is a powerful antidote to fear.
If the doctor has indicated that your loved one’s condition is terminal, you may want to discuss hospice care with the patient and their physician. Hospice staff and volunteers are specially trained to support those facing the end of life, as well as their families and friends. Hospice workers can teach you how to care for the patient and help you to understand the course of the illness.
Taking Care of Yourself
Although knowledge can make family members feel more confident in their ability to provide the necessary care, dealing with mesothelioma still puts a tremendous emotional strain on everyone close to the patient. Often, this strain is so great that some healthcare professionals now view the families of cancer patients as “secondary patients.”
For this reason, it’s important for caregivers to remember to care for themselves. Diet and nutrition, exercise, and rest and recreation are just as important for caregivers as they are for patients. Family members must maintain their health and energy levels, not only for their own wellbeing, but also to be able to continue caring for their loved one.
Support groups are an excellent resource for families of people with mesothelioma or other cancers. These groups offer everything from emotional support to practical help with patient care, finances and more. When caring for someone with mesothelioma becomes overwhelming, a support group may be able to offer just the help you need. No one affected by mesothelioma-whether it’s a patient, family member or friend-has to carry the burden alone.
